Calling all adults with Rett syndrome! We'd love you to join our "Peer Group for Adults" 👥

Join us for an opportunity for adults with Rett syndrome to come together, connect, have fun and communicate!

The next session is taking place:
🗓 Thursday 20th February
⏰ 19:00 - 20:00
🔗 On Zoom: https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1

These sessions will be facilitated by our RCCs, with activities and topics steered by the interests of the group!

There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.

This is open to anybody over the age of 18 with Rett syndrome. Each person with Rett syndrome needs to be accompanied by a supporter.

To join our session THIS THURSDAY (20.02), simply click on the following link:
🔗 https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1

If you have any questions or issues please get in touch 💜💚

#RettUK #RettSyndrome #PeerGroupForAdults

Calling all families living in Herts, Beds & Bucks! Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area? 🌤️ 🎉

Join us for a fun morning open to all the family! Our RCC's will be on hand to facilitate the event and ensure everyone has a lovely time together 💚

🗓️ Saturday 8th March
⏰ 10:30-12:00
📍 The Way Coffee House, Dunstable, LU6 1SX

If you're interested in joining, simply complete our registration form here:
🔗 https://forms.office.com/e/3QPFWsGTAe

Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking 💜

🚨 Please note, sign-up forms close at 15:00 (3pm) on Friday 7th March 🚨

Any questions please let us know!
We hope to see you there 🥰

#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #HertsBedsBucks #Hertfordshire #Bedfordshire #Buckinghamshire

Calling all dads and other male relatives of people with Rett syndrome...Beer and Banter is back and re-vamped to be better than ever in 2025 🥳

This year we are truly excited to be changing the format of these groups, from what might be perceived as a place for a drink and a chat, to a more focussed discussion group for men in our community to gain support 💚

Don't miss the first session of 2025:
🗓️ Thursday 12th February
⏰ 20:00 - 21:00
🖥 Microsoft Teams (just click on the link below 🔗)

We are planning some great guest speakers, who will come along and answer your questions about epilepsy, sleep, respiratory issues and many other things that we all wish we knew more about!

We also recognise that being a dad or the male relative of a child/person with Rett syndrome, can be enormously challenging and put a significant strain our mental health.
It can be tough to speak to our mates or our work colleagues, about our family life, our concerns or our worries, if they don’t have a son or daughter with Rett how could they possibly understand?

This is why we feel strongly that a group of this type is so important. It’s a safe place, a place to share those concerns with people who are also living through similar experiences 🥰

Join Brett, dad of Charlotte, and Steve, dad of Lydia, this week for a more informal discussion on the group's future as well as getting to know the other men in our community!

Whether you already attended the group previously, joined in with our first in-person session at the Family Weekend or are totally new to us, everyone is welcome 😊

If you’re interested, you can join the call directly through the Teams link ⬇️
🔗 https://teams.microsoft.com/l/meetup-join/19%3ameeting_MWUzYTNjZTAtOWI5NS00OGFhLWJmYWQtZTgzMWRhNjI4Y2Nm%40thread.v2/0?context=%7b%22Tid%22%3a%22e9c381c1-2782-48be-82fb-16b5359f0399%22%2c%22Oid%22%3a%2221f32e11-cad8-488f-bdb0-9f7f4daf326b%22%7d

#RettUK #RettSyndrome #BeerandBanter

Don't miss our next "Online Peer Session" 👥
An opportunity for people with Rett syndrome of any age, to come together, connect, have fun and communicate!

This session is taking place TODAY:
🗓 Wednesday 12th February
⏰ 13:00 - 14:00
🔗 On Zoom: https://us06web.zoom.us/j/85195437474?pwd=9Zjat03ujh4JaxQRueGvRyDVMtZpQW.1

These sessions will be facilitated by our RCCs, with activities and topics steered by the interests of the group!

There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.

This is open to people with Rett syndrome of ALL ages, so you could even join in from school. Each person with Rett syndrome needs to be accompanied by a supporter.

To join our session today 12.02, simply click on the following link:
🔗 https://us06web.zoom.us/j/85195437474?pwd=9Zjat03ujh4JaxQRueGvRyDVMtZpQW.1

🚨 Please note, these sessions will be taking place every four weeks, so the next session will take place on Wednesday 12th March (using the same zoom link) 🚨

If you have any questions or issues please get in touch 💜💚

#RettUK #RettSyndrome #OnlinePeerGroup

As we head into Spring, why not join us for a grand day out with all the family?! 🌤️ 🎉

This is the perfect chance to meet other families in your area in-person and enjoy activities together 😍 Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome!

These activities have been chosen to suit any age, from toddler to adult, and offer accessible venues, toilets and parking. Our RCC's will be on hand to facilitate the day and ensure everyone has a lovely time together 💜

So far we've got five fun days planned across the country (with more in the works), so we hope you can join us 🥰

If you are interested, look for the one closest to you, and click on the booking link to register 🔗

Herts, Beds & Bucks:
🗓️ Saturday 8th March
⏰ 10:30-12:00
📍 The Way Inn, Dunstable
🔗 https://forms.office.com/e/3QPFWsGTAe

North West & North Wales:
🗓️ Saturday 8th March
⏰ 10:00-13:00
📍 Delamere Forest (meet at the cafe)
🔗 https://forms.office.com/e/MTM04mwqqC

Yorkshire:
🗓️ Saturday 15th March
⏰ 10:00-13:00
📍 The Royal Armouries, Leeds*
* please note, you have to book a free entry ticket to the Royal Armouries in advance *
🔗 https://forms.office.com/e/jzHkpqcLxD

Midlands:
🗓️ Saturday 22nd March
⏰ 13:00-15:00
📍 Cannon Park, Birmingham (meet outside the Arts Centre)
🔗 https://forms.office.com/e/vs2NQMhDat

Hampshire:
🗓️ Saturday 5th April
⏰ 10:30-12:00
📍 Royal Victoria Park, Southampton (meet outside the cafe)
🔗 https://forms.office.com/e/11VepfCFSs

🚨 Please note, sign-up forms close at 15:00 (3pm) the day before each event (exact dates on each sign-up form 🚨

Any questions please let us know!
We hope to see you there 💜 💚

#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities