Are you a Speech and Language Therapist or other professional who supports communication? We Need Your Help 📢

Can you take a moment to complete a short survey as part of our new project focusing on ‘Communication Support for People with Rett Syndrome in the UK’? 📝

If you live in the UK, you could answer these questions and more in our survey:
➡️ Do you work with children or adults with Rett syndrome?
➡️ What shapes your practice?
➡️ Where do you find support and guidance?
➡️ Have the Rett Syndrome Communication Guidelines helped you or have you not heard of them?
➡️ Have you participated in any of Rett UK’s communication activities or not felt they were for you?
➡️ What works and what would you change?

This project is led by Dr Gill Townend, lecturer at the University of Reading, research lead here at Rett UK and lead author of the Rett Syndrome Communication Guidelines.

Full details can be accessed via the link below or by scanning the QR code in the infographic. The survey can be completed on your computer or mobile device 🖥 🔗 https://redcap.link/5mpdfxgj

🚨The closing date for this survey is: Monday 20th January 2025.

If you have any queries, please contact: g.townend@reading.ac.uk

#RettUK #RettSyndrome #UniversityofReading #Survey #CommunicationSupport #CommunicationGuidelines

🗓️ What's Happening at Rett UK in January - Monthly Schedule 🗓️

Happy New Year to everyone 🥳 We hope you've had a peaceful start to the year and are ready to take on new challenges in 2025! We're back and ready for a year full of events and support, so let's take a look at what we've got coming up in January 👀

🚨 We’ve made some changes to our Communication Events schedule for 2025! Be sure to take not of the different sessions we run as they repeat the same weeks each month (and using the same zoom links too) 🚨

More information on each event will be posted accordingly. But for now, be sure to mark these events in your calendar so you don't miss anything 🗓️

You can find the access links to all our events via our Linktree (in bio) as well as any additional support, fundraising and resources links!
🔗 https://linktr.ee/rettuk

Got any questions, let us know below 💜 💚

#RettUK #RettSyndrome #MonthlyCalendar #WhatsHappeningAtRettUK #JanuarySchedule

📢 Are you a parent/carer of a child or adult with Rett syndrome? We Need Your Help 📢

Can you take a moment to complete a short survey as part of our new project focusing on ‘Communication Support for People with Rett Syndrome in the UK’? 📝

If you live in the UK, you could answer these questions and more in our survey:
➡️ Where do you find advice and support for communication?
➡️ What AAC systems and strategies have been recommended?
➡️ What are your aspirations and expectations?
➡️ Have the Rett Syndrome Communication Guidelines helped you or have you not heard of them?
➡️ Have you participated in any of Rett UK’s communication activities or not felt they were for you?
➡️ What works and what would you change?

This project is led by Dr Gill Townend, lecturer at the University of Reading, research lead here at Rett UK and lead author of the Rett Syndrome Communication Guidelines.

Full details can be accessed via the link below or by scanning the QR code in the infographic. The survey can be completed on your computer or mobile device 🖥
🔗 https://redcap.link/zjr6lwr3

🚨 The closing date for this survey is: Monday 20th January 2025.

If you have any queries, please contact: g.townend@reading.ac.uk

#RettUK #RettSyndrome #UniversityofReading #Survey #CommunicationSupport #CommunicationGuidelines

We wish our families, supporters and community a Merry Christmas and all the best for the New Year 🌟🎄

This holiday season, we are filled with gratitude for the generosity, love, and commitment you’ve shown us over the year. Whether you’ve donated, participated in events, volunteered, or shared our message, you’ve made a difference to the lives of those living with Rett syndrome 💜

As we look ahead to a new year, we remain steadfast in our mission to create a brighter future for every child and family affected by Rett syndrome. With your continued support, we will keep driving progress and hope 🥰

🚨 Rett UK will close at 16:30 on Tuesday 24th December and reopen at 09:00 on Thursday 2nd January 🚨

Need to speak to someone?
📞 If you need to speak to us for support when our office is closed, please call 07557 850 025 and leave a clear voicemail with your full name and contact number.
📧 If you prefer to email contact support@rettuk.org and we will contact you as soon as we can.

From all of us at Rett UK, Happy Holidays 🎄