Meet our experienced team based in Luton, Bedfordshire. The office is normally open from 8.30am to 4.30pm Monday to Friday.   Closed bank holidays and between Christmas and the New Year.  Outside of those hours there is an emergency helpline number 07557 850025.

Robert Adamek
CEO (Full-time)

Robert is an experienced marketing professional who has worked in busy marketing departments for over 17 years.  Robert has worked with a variety of organisations including the Milton Keynes Chamber of Commerce, World Trade Centre Milton Keynes, Bedfordshire Chamber of Commerce and NOAH Enterprise, Bedfordshire’s biggest homelessness charity. He joined Rett UK as Deputy CEO in July 2019 and took up up the role of CEO in December 2020.

Becky Davis
Trusts and Foundations Officer (Part-time)

Former CEO, Becky Davis, BA Hons Business Studies. PACC Voluntary Sector Champion, Brighton and Hove 2013. Finalist NatWest Inspirational Woman Award 2013 and Networker of the Year Award. Becky joined Rett UK in October 2014 having previously set up and run a successful charity in Brighton for disabled children and young people for 12 years. Becky is a former trustee of Rett UK and is also mum to Rosie (who has Rett syndrome) and two boys. Becky is also President of Rett Syndrome Europe. 

Julie Benson
Family Support Manager (Full-time)

Julie has qualifications in project management, advocacy, quality assurance and customer services. Julie has worked as a qualified advocate within the field of health and social care for over 15 years as well as 7 years’ experience working in special education. Julie is also primary carer to her sister who has cerebral palsy which has enabled her to gain lots of experience of working with professionals to ensure the best outcome and experience, from the carers’ perspective. Julie joined Rett UK in July 2012.

Donna Tinch
Office Manager (Part-time)

Donna joined Rett UK in July 2014. Her previous experience was as a Personal Assistant supporting at Director level within the corporate sector, local authority children’s services, private healthcare and as an Office Manager for the NHS.

Cherie Hunter
Trainee Trusts and Foundations Officer (Part-time)

Cherie joined our team in October 2023. Sister to Charlotte, (who had Rett syndrome), Cherie has worked in a variety of complex care settings and has previously fulfilled roles such as SENCO and Health Review Coordinator.

Rebecca Prince
Bookkeeper (Part-time)

Becca joined Rett UK in March 2016 and is responsible for supporting the Honorary Treasurer and Chief Executive in all aspects of the charity’s finances. She joins our team with over 16 year’s experience of working within a finance department.

Office Volunteers: Angela Duncan

Patrons:  Dame Evelyn Glennie, Gloria Hunniford, Jon Snow, Victoria Murphy and Lee Allen.

Honorary Roles and Trustees
President: Yvonne Milne MBE
Vice-President: Lorna Jaffa

Chair of Trustees: David Rogerson
Honorary Treasurer: Stuart Ledger
Honorary Secretary: Robert Valentine
Other trustees are: Pauline Bardon, Clive Beadle, Michael Britten, Joanna Campobello,  Debbie Cavaldoro, Dee Cowburn, Mary Forrest, Philip Gander, Tom Gander, Elliott Le-Warde, and Romi Löffler.