Online Peer Session

We wish our families, supporters and community a Merry Christmas and all the best for the New Year 🌟🎄

This holiday season, we are filled with gratitude for the generosity, love, and commitment you’ve shown us over the year. Whether you’ve donated, participated in events, volunteered, or shared our message, you’ve made a difference to the lives of those living with Rett syndrome 💜

As we look ahead to a new year, we remain steadfast in our mission to create a brighter future for every child and family affected by Rett syndrome. With your continued support, we will keep driving progress and hope 🥰

🚨 Rett UK will close at 16:30 on Tuesday 24th December and reopen at 09:00 on Thursday 2nd January 🚨

Need to speak to someone?
📞 If you need to speak to us for support when our office is closed, please call 07557 850 025 and leave a clear voicemail with your full name and contact number.
📧 If you prefer to email contact support@rettuk.org and we will contact you as soon as we can.

From all of us at Rett UK, Happy Holidays 🎄

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Rett UK1 week ago

🎄 Christmas E-cards Still Available 🎄

Missed the last post for getting any Christmas cards sent out? Wanting to send some last minute cards to your loved ones?

Well, why not send a Christmas E-card 🤩
We're working with DontSendMeACard.com to help you easily send last minute cards to all your loved ones!

Simply pick one of the various designs, write your message, enter the recipients' email address, and it is delivered straight to their inbox 📩

You can also make a donation to Rett UK in the process! Why not donate the amount you'd have spent on stamps 💜

Send your e-cards here:
🔗 https://www.dontsendmeacard.com/ecards/charities/rett-uk/christmas

Thank you 💚

#RettUK #RettSyndrome #Ecards #ChristmasEcard #DontSendMeACard #Christmas2024

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Rett UK2 weeks ago

🏃 MyWay London Marathon Places Still Open 🏃

With the new year fast approaching, are you starting to think of what new challenges and resolutions to undertake in 2025?
Well, why not consider the MyWay London Marathon?! 🎉

📅 Date: Sunday 27th April 2025
💸 Registration Fee: £10
💰 Minimum Fundraising Target: £100
📝 Registration Deadline: March 2025
🔗 https://forms.office.com/e/40JT27DPwT

No matter where you are in the world, you can run, jog or walk the 26.2 miles MyWay for Rett UK! Do it your way - any time from 00:00 to 23:59:59 BST on the same day as the mass event in London 😍 You can do it with friends or on your own, from home or away, in stages or all at once – it’s up to you!

This is a great chance to challenge yourself to complete a marathon without necessarily needing to run...you could walk the route taking in your local scenery, or jog at your own pace 🥾

Last year Helen Ashwell was inspired to take on the 2024 virtual MyWay London Marathon, with her good friend Sue Baines, in honour of Erin 💜

Helen told us: “Rett UK has given Erin a voice. Without Rett UK’s eye gaze loan programme, Erin would never have had this opportunity and we cannot thank Rett UK enough, that’s why we decided to do this fundraiser for the charity. We walked 26.2 miles on Sunday 21st April, which took us over 7 hours! Erin came and joined us for a bit too. I’m really glad I did it, it was a great experience and we raised £880.”

Does Helen's story inspire you to take on the challenge for yourself?

Reserve your space here:
🔗 https://forms.office.com/e/40JT27DPwT

All runners who take part will also get access to a specialised training programme and app courtesy
of Coopah Running 🗓️ More information will be sent once your place is secured!

Find out more information about the MyWay London Marathon here:
🔗 https://www.tcslondonmarathon.com/the-event/virtual-marathon

Any questions please get in touch 💜💚

#RettUK #RettSyndrome #LondonMarathon #TeamRett #VirtualLondonMarathon #TCSLondonMarathonMyWay

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Rett UK2 weeks ago

Calling all adults with Rett syndrome! We'd love you to join our final "Peer Group for Adults" of 2024 👥

Join us for an opportunity for adults with Rett syndrome to come together, connect, have fun and communicate!

The next session is taking place:
🗓 Thursday 19th December
⏰ 19:00 - 20:00
🔗 On Zoom: https://us06web.zoom.us/j/86067968722?pwd=KHhWBKbwkXGaXSk4WFYMCE02FWyrjh.1

Following the success of our first in-person Adult Peer Group at the Family Weekend last month, don't miss this final chance to join us online in 2024!
These sessions will be facilitated by our RCCs, with activities and topics steered by the interests of the group!

There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.

This is open to anybody over the age of 18 with Rett syndrome. Each person with Rett syndrome needs to be accompanied by a supporter.

To join our session THIS THURSDAY (19.12), simply click on the following link:
🔗 https://us06web.zoom.us/j/86067968722?pwd=KHhWBKbwkXGaXSk4WFYMCE02FWyrjh.1

If you have any questions or issues please get in touch 💜💚

#RettUK #RettSyndrome #PeerGroupForAdults