Rett UK has over 30 years experience of supporting families affected by the disorder. We are in a unique position of holding a wealth of information gained from the families of those children first diagnosed in the UK and are supported by our key medical advisers, including Dr Hilary Cass and Dr Angus Clarke, who are extremely experienced in Rett syndrome.

Rett UK has a national helpline, 01582 798911, operated by our Family Support Team who are professionally trained, very knowledgeable in Rett syndrome as well as having solid personal and practical experience supporting people with disabilities in various settings. We also hold specialist NHS led Rett Clinics at four centres around the UK, have Regional Events, a Family Weekend, local support groups and a parent to parent contact network. Find out more about our support services here.