Rett syndrome is genetic, but generally not inherited. It is most commonly caused by a sporadic mutation on the MECP2 gene and can happen in any family at any time. There are several multiple cases of Rett syndrome in families worldwide, but these are very rare. Below are some useful resources explaining the genetic basis of Rett syndrome.
ABC of Rett Syndrome A General Introduction
Genetics – Questions Parents Ask
Rett Syndrome A Useful Summary
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Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!
Caring and sharing. Informative and supportive. Great stuff for all those families. X
Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.
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