This is our chance to make a lot of noise about Rett syndrome, sharing stories that inform, educate and engage people who can help us improve the lives of people living with Rett syndrome and their families. And to raise some much-needed funds for Rett UK.
How can you get involved this year?
This October, Rett UK is inviting you to take part in our key number challenge and help raise awareness about the devastating impact that the syndrome has on those directly affected and their families. Rett UK has been supporting the Rett syndrome community for 37 years and we believe that only by people really understanding the true nature of the disorder will we be able to win over new hearts and minds who will join us in searching for better solutions to a host of difficulties encountered on a daily basis.
The challenge comprises of three key numbers that are important to the Rett community:
1,500 – The number of people with Rett syndrome we estimate there would be in the UK if they were all diagnosed.
10,000 – The prevalence of Rett syndrome in females is around 1:10,000.
40,000 – The prevalence of Rett syndrome in males is around 1:40,000.
The idea
You pick one of the key numbers and take part in your own custom challenge based round this number. That could be anything from losing 1500 grams of weight, running for 10,000 seconds or cycling 40,000m over the course of October. No idea or goal is too crazy and you are welcome to do it on your own, or involve friends, family or work colleagues – the choice is yours! So Run, Walk, Push, Cycle – miles, kilometres, steps, it all counts!
Looking for something less active:
Purple Tea Party
Invite some friends together for an afternoon of cake, tea and fundraising! Great option for the little ones as well to enjoy some treats with their friends!
Purple pumpkins
As we head towards the end of October its Halloween of course! Purple Pumpkins can look amazing and are great fun to do. If you are a Facebook user, why not share a photo of your Purple Pumpkin, with a few lines about why support for Rett UK is so important to you?
Quiz Night
A classic fundraising activity, but always very effective. A quiz night is a really easy way for you.
Steps for Rett
A charity walk is a great way to raise money and have a good time, bringing people together. Walks are a popular fundraising event, which can involve the whole family/friends/work colleagues and are suitable for a wide variety of participants, no matter the time of year. Across the UK, there are already thousands of pre-planned walking routes, which make a great start to organising your event.
1. Get your child’s school/schools or maybe even your old school on board and set a date.
2. Let us know your date and we will:
- Send you out custom posters with your schools’ logo and information leaflets if needed.
- Help promote your event to all our followers on social media.
- Organise for large scale thank you posters for after the event letting you know how much you’ve raised
- Make sure we give you a massive shout out in Rett News, our quarterly publication
3. Download our flyer and info here>>
Download our Rett Syndrome Awareness Logo & Information leaflet
Rett Syndrome Awareness Logo >>
Rett Syndrome Awareness Info Flyer >>
Follow us on social media and use our hashtags
What is the biggest challenge your daughter/son faces on a daily basis?
Share a social media post and photo of your daughter/son
#LivingWithRettSyndrome #RettSyndromeAwareness #RettUK
Write a guest blog for our web site –
#LivingWithRettSyndrome – approximately 250 words and a photo – email to robert.adamek@rettuk.org
Got your own idea of what you would like to do?
Don’t forget to let us know what you have planned and we can support you with fundraising and promotional materials. Talk to us and we will help you every step of the way.
We would love to see some photos and hear how it went for future Rett News – please share with donna.tinch@rettuk.org
