🖥️ Webinar: Adults and AAC 🖥️

Join us on Zoom for an opportunity to listen to Judith & Brett as they share their very personal and individual communication journeys of their adult daughters Polly & Charlotte. Both of their daughters could be considered “late starters” to AAC. Listen to Judith and Brett as they discuss their own experiences and how this has changed the lives of their daughters.

Webinar: Adults & AAC 💻
🗓️ Wednesday 25th September
⏰ 20:00 - 21:00
🔗 Zoom: https://us06web.zoom.us/j/84797886822?pwd=HdE9LUOIGJOIoZDgDGgiHnK06wkIQ1.1

🚨 There is no need to register for this webinar, simply join via the link above 🚨

Please note:
*Members of our team will be available to answer any questions via live chat!
**There will be a replay of this webinar announced at a future date.

Any questions please get in touch 💜 💚

#RettUK #RettSyndrome #Webinar #AdultsandAAC #AAC

🚶‍♂️ After 7 days of walking from London, Dennis has safely arrived in Paris this morning! 🇫🇷 Despite some painful blisters, he’s in good spirits and ready to explore the City of Light for a few hours before starting his return journey back to London. 🌍

Wishing you the best of luck, Dennis! 🙌

Support Dennis on his incredible journey here: stewardship.org.uk/pages/dennislondonparislondon2024

#LondonToParis #ParisToLondon #CharityWalk #GoodLuckDennis

Will you be joining our next "Communication Partner Drop-In Clinic"? 👥

A chance for anyone supporting an individual with Rett syndrome to get their communication questions, big or small, answered!

The next session is taking place:
🗓 Thursday 5th September
⏰ 12:00 - 13:00
🔗 On Zoom (link below)

If you support someone with Rett syndrome and have any questions about their communication – big or small – this is an opportunity for you to get answers. It's also a time to share any communication highs/lows.

No need to register or stay for the full time, just drop in during the clinic hour and ask our RCCs for help.

It doesn’t matter what stage of communication the person with Rett syndrome is at – there may be nothing in place yet or you may be a bit further on and feeling stuck. No question is too silly or scary!

To join our session on Thursday (05.09), simply click on the following link:

🔗 https://us06web.zoom.us/j/82784847395?pwd=jDgWk9RJU9GDeYngRA1cUhLlJjwMKw.1

These sessions run twice monthly so if you can't attend this clinic the next one is taking place on Tuesday 17.09 at 20:00.

If you have any questions or issues please get in touch 💜💚

#RettUK #RettSyndrome #CommunicationPartnerDropInClinic

🗓️ What's Happening at Rett UK in September - Monthly Schedule 🗓️
With summer drawing to a close and normal routines coming back, we've got a jam-packed schedule of events planned for you in September! So let's take a look at everything coming up at Rett UK this month 🥳

More information on each event will be posted accordingly. But for now, be sure to mark these events in your calendar so you don't miss anything 🗓️

🚨 Don't miss out on our next webinar, this month focussing on Starting AAC with Adults - Wednesday 25th September (20:00) 🚨

Got any questions, let us know below 💜 💚

#RettUK #RettSyndrome #MonthlyCalendar #WhatsHappeningAtRettUK

🏃‍♂️ Michael McCabe is taking on 3 charity runs this year to support Rett UK, including the Great North Run this weekend! 🏅

Michael is raising funds in honor of his friend’s daughter, Katie Greener, who recently passed away.

🗣️ Michael shared:
"I’ve been training hard, keeping my pace under 9 minutes per mile, whether it's a 3-mile run or a 10-mile stretch. I’ve done the last two GNRs in 2 hours 10 minutes and 2 hours 15 minutes. With more training this year, I completed the Sunderland Half Marathon in 1 hour 52 minutes, so I'm aiming for under 2 hours this year.

The Great North Run has always been a dream of mine, but I never thought I’d have the ability or willpower to complete it. After a couple of setbacks, I finally achieved it on my third attempt in 2012, and it was tough but absolutely worth it. The crowd’s energy, the encouragement from fellow runners, and knowing my family was there cheering me on made it unforgettable. This year, I’m ready to go again, and I’m doing it for Katie and everyone affected by Rett syndrome."

📲 If you’d like to support Michael and Rett UK, you can donate here: Michael's Fundraising Page:https://ajbellgreatnorthrun2024.enthuse.com/pf/michael-mccabe

Let’s cheer Michael on and help him smash his fundraising goal! 💙 #RettUK #GreatNorthRun #CharityRun #RunningForACause

💜 What's Happening at Rett UK This Week? 💚
Let's take a look at what we've got coming up this week! Make sure to mark these in your calendars so you don't miss out 🗓️

🚨 And be sure to check back later to see our overview of events for September 🚨

Communication Partner Drop-In 👥
🗓️ Thursday 5th September
⏰ 12:00 - 13:00
🔗 Zoom: https://us06web.zoom.us/j/82784847395?pwd=jDgWk9RJU9GDeYngRA1cUhLlJjwMKw.1

Great North Run 🏃
🗓️ Sunday 8th September
🍀 Help us wish Good Luck to the runners in #TeamRett

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You can find links to all our events here too:
🔗 linktr.ee/rettuk

Any questions please get in touch!
We hope you have a lovely week 💜 💚

#RettUK #RettSyndrome #WeeklySchedule #CommunicationPartnerDropIn #GreatNorthRun #GNR2024