📢 Are you a parent/carer of a child or adult with Rett syndrome? We Need Your Help 📢
Can you take a moment to complete a short survey as part of our new project focusing on ‘Communication Support for People with Rett Syndrome in the UK’? 📝
If you live in the UK, you could answer these questions and more in our survey:
➡️ Where do you find advice and support for communication?
➡️ What AAC systems and strategies have been recommended?
➡️ What are your aspirations and expectations?
➡️ Have the Rett Syndrome Communication Guidelines helped you or have you not heard of them?
➡️ Have you participated in any of Rett UK’s communication activities or not felt they were for you?
➡️ What works and what would you change?
This project is led by Dr Gill Townend, lecturer at the University of Reading, research lead here at Rett UK and lead author of the Rett Syndrome Communication Guidelines.
Full details can be accessed via the link below or by scanning the QR code in the infographic. The survey can be completed on your computer or mobile device 🖥
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https://redcap.link/zjr6lwr3
🚨 The closing date for this survey is: Monday 20th January 2025.
If you have any queries, please contact: g.townend
@reading.ac.uk
#RettUK #RettSyndrome #UniversityofReading #Survey #CommunicationSupport #CommunicationGuidelines